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Tag Archives: hypotonia

2015 in Review

One thing I miss about doing a Project 365 or a Project 52 is the story I end up with for the year. At least with those projects, I’m shooting and blogging frequently, so I’m kind of keeping a virtual scrapbook of our lives. Instead of a Christmas letter (which last year was my very first one), I...

Video EEG

I haven’t been posting much and this might be the longest break I’ve taken from my blog in a long, long time. Ever since I found out about my thyroid nodules, I haven’t been wanting to pick up my camera or write or do anything but be with my family. I don’t think I even...

Singular Love

This is a late Mother’s Day post… because on Mother’s Day, I could not figure out what to say. Last year, I did an in-depth post that I felt couldn’t be topped in terms of sentiment (Happy Mother’s Day 2014)… plus this year, I was feeling a bit angsty. Let me explain. In the last...

Reaching

Reaching… for answers, for an explanation, for a reason. Dreading another phone call from the school, another email from the teacher, another medication to try, another lecture to give, another apology to other parents, another drive to Austin to see the specialists, another bad report, another meeting, another hard day. It is unending. It is exhausting....

Anna’s 14th Birthday

Anna turned 14 last Monday… gulp. 14. FOURTEEN. Suddenly, adulthood is looming. I think back to when I was 14 and Jenny too… and it seems like it’s a completely different reality than what my daughter is living. I was told last month that we need to start the process of setting up her guardianship...

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